tag:blogger.com,1999:blog-4379284421995585262.post3642593106564320704..comments2022-12-10T03:40:09.414-07:00Comments on One, Two, Six: 2 YearsTarynhttp://www.blogger.com/profile/07333815032699658827noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-4379284421995585262.post-9009835727725247612012-12-04T15:24:30.297-07:002012-12-04T15:24:30.297-07:00Hi from New Zealand - our son Phoenix has Doose Sy...Hi from New Zealand - our son Phoenix has Doose Syndrome and Im on the email group list as well. Its great you are telling your story through your blog and I will follow your journey with interest - have a lovely day, KarinaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4379284421995585262.post-75459112890599269002012-11-14T20:12:31.486-07:002012-11-14T20:12:31.486-07:00how is ethan doing now?how is ethan doing now?Benhttps://www.blogger.com/profile/16921921051099194629noreply@blogger.comtag:blogger.com,1999:blog-4379284421995585262.post-80640663001465617872012-11-01T17:35:07.713-06:002012-11-01T17:35:07.713-06:00OK I've typed this 4 times now. My keyboard ha...OK I've typed this 4 times now. My keyboard hates me and I am having a stressful day. Even when I hit send my message came to you in a scrambled mess. <br /><br />SO in short. I am so very happy. This news makes my day much better. You don't know me but I follow you on YouTube and on your blog. I have been following Ethan's journey for what feels like ages now. I feel some of your heart ache and my own pain and hope for little Ethan. I have love for your amazing little man. What I always felt was "that poor baby boy'.<br /><br />Now I am elated! I hope to hear about his new adventures. And if for some reason he does get some seizure activity back I am hoping it's tiny amounts that won't change Ethan and allow this good to keep growing into a great life. <br /><br />So from a stranger, I send you my love and hopes for a wonderful long and happy life ahead for you all. You deserve it so much.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4379284421995585262.post-23847364450513204792012-11-01T16:27:24.599-06:002012-11-01T16:27:24.599-06:00I too am a stranger to you. I comment on YouTube. ...I too am a stranger to you. I comment on YouTube. I read your blog but you don't know me. However I feel if that still means seizures but not in extreme to stop Ethan from coming back as he is that IS a happy ending. <br /><br />I will be checking back. Please continue to write when it's right for you. They are like little gifts. He is is YOUR son but he has people he will never know who loves him and are pulling for him. <br /><br />To long and happy school days, holidays and all the days to come. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4379284421995585262.post-208905263690313632012-10-18T22:55:26.828-06:002012-10-18T22:55:26.828-06:00I'm a stranger to your family, and yet your po...I'm a stranger to your family, and yet your post fills me with joy. My son started having seizures about 2 years ago as well, and during that time of internet research I stumbled on your blog. I've only read it occasionally, but happened to read about the surgery and found myself the other day wondering how this wonderful little boy who I'd never met was doing and hoping that his recovery was speedy and that you were seeing some success. I can also totally relate to the desire to hope that you've finally figured it out and yet the way that you have to hold that hope back because you couldn't take it if it isn't true. It's a horrible thing to not be able to embrace that hope fully, but I have faith that you have taken a great (and difficult) step and soon you will be able to fully open your heart to that hope. megfutbolhttps://www.blogger.com/profile/08164437886929682775noreply@blogger.comtag:blogger.com,1999:blog-4379284421995585262.post-10756164254353054322012-10-15T13:50:44.320-06:002012-10-15T13:50:44.320-06:00You and Mike have been courageously dedicated pare...You and Mike have been courageously dedicated parents an inspiraton to all who read your story. Never give up, always hope and pray. <br />Thank you for sharing your story. Praise God for Ethan's successful surgery, and we continue to keep you all in our prayers. <br />We love you<br />Grandpa and GrandmaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4379284421995585262.post-29590700329318336082012-10-13T20:49:43.445-06:002012-10-13T20:49:43.445-06:00So excited for you! What a blessing to see that pr...So excited for you! What a blessing to see that precious boy coming back. God is good. <br /><br />Rebekka<br /><br />www.faithandhopedaytoday.blogspot.com5stoneshttps://www.blogger.com/profile/07064640152638916728noreply@blogger.comtag:blogger.com,1999:blog-4379284421995585262.post-88376925958349171192012-10-13T12:39:20.077-06:002012-10-13T12:39:20.077-06:00Beyond thrilled for you all! Every day is a new da...Beyond thrilled for you all! Every day is a new day as he "wakes up" more and more! What a joy! May God continue to bless you all! Zaki sends high fives!<br /><br />www.facebook.com/turnthewhitehousepurple Heather Jacksonhttp://www.doosesyndrome.orgnoreply@blogger.comtag:blogger.com,1999:blog-4379284421995585262.post-58938474681045767752012-10-12T17:01:19.093-06:002012-10-12T17:01:19.093-06:00wow. this is an amazing post. your words are pow...wow. this is an amazing post. your words are powerful. thank you for sharing!<br /><br />Laurie<br />www.ourjourneywithdoose.blogspot.comBenhttps://www.blogger.com/profile/16921921051099194629noreply@blogger.comtag:blogger.com,1999:blog-4379284421995585262.post-58293126778047052292012-10-12T11:01:56.722-06:002012-10-12T11:01:56.722-06:00For the life of me, I can not find words in my voc...For the life of me, I can not find words in my vocabulary to express how fantastic this is. I can just feel how enthusiastic you are about the future, especially for Ethan. I have tears of joy, I can only imagine how much meaning this Thanksgiving will have for you all. Such wonderful news!Maryhttps://www.blogger.com/profile/04068684611506771719noreply@blogger.comtag:blogger.com,1999:blog-4379284421995585262.post-87252813906881223622012-10-12T06:52:15.133-06:002012-10-12T06:52:15.133-06:00You're an absolute inspiration. Ethan has a He...You're an absolute inspiration. Ethan has a Hero, and he calls her mom. Big hugs xo<br /><br />I am beyond excited that his condition keeps improving and that there are no seizures so far. Will continue to pray that this remains so.sylviehttps://www.blogger.com/profile/14876564867100136731noreply@blogger.com