|They were so sweet, they turned on the lights for him:)|
|Waiting to go up.|
|Still doesn't phase him!|
myoclonics and absences. They started small and not too frequently, and hour by hour got worse. Last night he was up all night seizing. It is very rare that he has seizures at night, and he was having clusters every time I woke up last night. He got up this morning and it's been non stop. If I told you my child had been up since 6:00 in the morning, and by 7:30 he had over 50 seizures you would probably think I was crazy. That's been our morning. We are living off rescue meds. It seems his regular 3 prescriptions he takes 3 times a day, 13 pills a day are doing nothing. It's great that the rescue meds stop his seizures. The problem is eventually they won't because his body will get used to them so you're constantly questioning when he really needs them. To make matters worse we had a blizzard yesterday and we're literally snowed in. If I needed to get him to the ER I couldn't. I actually just said to Mike that I should probably hop in the shower and pick up the house in case I need to call an ambulance today. It's ridiculous to even have to think that way. The frustration, stress, and anxiety are very high right now. We're just hoping there is something positive laying in the near future for us.
The type of seizures he's having this morning. And yes, I give him cookies at 7:00 am!: