New Life

Life has changed in every way for Ethan and our family since starting the diet. Our life does very much revolve around his food, but it no longer revolves around seizures every 20 minutes. In the last month and a half he has gone from 50 or more seizures a day to less then 10 a week! It's amazing, but true. We had our first keto checkup earlier in the week, and his doctor literally did not recognize him. She was all smiles, and said she wasn't sure she had ever seen him standing up, let alone running around and talking up a storm! So it looks like we're in this diet for the long run because of the amazing benefit. We will talk about weaning meds in about 6 months, and probably another extended EEG around that time too to see if he is still having subclinical seizures.

With this "new" life has come things Ethan hasn't done since this nightmare started. For the first time in 6 months he went to the playground:) He had so much fun! He was running around like a normal little 4 year old. And go figure, he was more sure on his feet than he has ever been. We have never just let him go off and play because he's been so clumsy his whole life. We just never knew why.




When is the last time you saw him this happy?!?

Clumsy no more!


I don't have much to report, which is why I haven't been writing much. He's just amazed us all at how well he's done. He is not the same boy he's been for the last 6 months, and he's been making up for his down time with crazy behavior and not wanting to listen to mom and dad! He'll get over it, we're just happy to have our boy back!

Mr. Jet has been doing amazing as well. He's so smart, and extremely loyal. He learns something new every day, and his list of mastered commands is growing by the second. In 10 minutes today he mastered a new one, "leave it". Even with super tasty treats touching him, he won't touch them!

Good Boy!