It seems very odd to me that he would have an extremely rare seizure disorder along with an extremely rare metabolic disorder. They HAVE to be connected some way. I'm very nervous about this appointment. I'm terrified I'm going to get some extremely bad news. All I know is I'm sick of seizures. My life revolves around seizures and seizure medication. I was so ready to start this diet and hopefully get rid of the seizures. Now we have a whole other thing to deal with. I was so ready to be done with looking in my rear-view mirror and seeing a seizing child in my back seat. No, he's not gazing off, he's completely unconscious and seizing.
Also, because I have become terrible with communication since this all started, I wanted to thank Great Grandma and Grandpa so much for the cards and the movie today! Ethan LOVES getting mail, and he was so happy to see Elmo today! We have been watching it all evening. Thanks!!!
|He loves Elmo!|