|That much Valium would make me pass out too.|
It was heartbreaking being in the hospital yesterday. Ethan should have been admitted on Sunday to start the diet. He should have been on day 3, up on the eighth floor just starting to be introduced to foods. He could have even been having some seizure relief by this time. But he wasn't. Instead, it was noon and we were already up above 35 seizures for the day. He was passed out in a wagon while we were eating lunch because the second he would come out of one seizure he would go right back into another. We had to give him Diastat in the doctors office because he wouldn't stop seizing. I hate having to give him that, not to mention the more he has it the more he gets used to it. As if 13 (now 14, added another yesterday....) pills a day wasn't enough for a 3 year old, he's getting dosed with massive amounts of Valium every few days to stop his seizures from spiraling (more?) out of control. Sure, the stuff stops them right now, but what is it doing to his little body? What is the effect of all these drugs going to be in 5 years? Prescription drugs are no more safe than street drugs, they're just more controlled, and half these drugs aren't FDA approved for children anyway. He's regressing more, and it's becoming harder and harder to understand his speech every day. Poor boy:(
|An adult would have a hard time with this many pills.|
People who know me know I know dogs..... Very much inside and out. I have been training dogs since I was young, and have even trained a service dog. I have as much, if not more knowledge than many of the people working for the organizations and I have decided to take on the task of training a dog for Ethan. The search for the right puppy will be a long one. The breed doesn't matter so much as the temperament and size of the dog. I know how to temperament test puppies, and can tell you what a 6 or 8 week old puppy will be like as an adult, as well as their trainability and intelligence. Once we think we are at a place where we will be home for a while and Ethan hopefully won't be in and out of the hospital for a while will probably be a good time to bring a puppy in. We will give the dog minimal attention, and have it spend the majority of its time with Ethan in hopes of them forming an extremely close bond and hopefully the dog being so in tune with him that it will be able to detect the chemical changes and alert his seizures. If that doesn't happen even for a few years, the dog will still provide him with a helpful companion that can assist before and after seizures. I will be in charge of training, and am confident that I can get the job done! I am looking for donations to help out with the process. I figure the initial costs of a puppy will be in the $500-$700 range including the puppy, supplies, and a spay or neuter. Thanks to initial donations we are already half way there! This would normally not be a problem for our family, but with the added 5 to 6 hundred dollars a month in medical bills, things like this are less obtainable for this:) Even a small donation of a couple dollars is helpful if you could manage. This dog would just give Ethan back so much of what he has lost.
I must add, we already have a dog, an amazing mutt that Mike and I rescued about 6 years ago. He is an extremely well behaved and lovely dog, but unfortunately he really doesn't care for the kids. He basically just leaves them alone, and won't interact with them at all. He tolerates them, but that's about the end of it. He bonded with the adults in his life early, and only wants attention from us. Plus he's getting older, and is stuck in his ways. We love him anyway though, but he's just not right as a service dog! But the kids still love him!