|Passed out in the ER|
The ambulance ride was pretty uneventful. Once we got there he was so drugged out of his mind it was ridiculous. The Children's ER couldn't believe how much they had given him. They said it was enough of just the Valium for an adult male. Ethan is almost 4 and only weighs 38 pounds. Apparently their motto down there is just keep dosing! While we were waiting for a room to open up, the EEG tech came down to hook Ethan up for 24 hour video monitoring. They turned it on and the first thing they said is, "Well, looks like he's got a bunch of drugs in his system"..... Yeah no kidding. By this time he couldn't even sit up on his own. He was just laying there with his eyes open and dilated staring at the ceiling like a zombie.... Oh still seizing. A room finally opened up and by the time we got settled in it was 2 in the morning. Ethan had over 100 seizures this day. Poor guy!
It was a pretty uneventful night. I didn't see him seizing much. I got up a few times in the night to look at the EEG screen and it was showing spikes every few seconds, and full out seizures every few minutes. Ethan however was showing zero outward signs of seizures. When he woke up this morning he was still completely out of it. He still can't walk and can barely sit. The neurology team has been in to talk to me a few times, and it looks like they're trying to push the diet through so we can start sooner. One of the reasons they didn't want us to start it was because they were afraid of the fasting stage.... Well Ethan hasn't eaten for about 26 hours at this point because they didn't want him choking while seizing. He has had zero negative effects from not eating.
|Totally out of it, but with his best friends!|
He is currently fast asleep. He always has seizures when falling asleep, and they give you a button to push when you see a seizure so they can review it on the EEG. I saw him have 1 seizure and pressed the button, and have not seen another thing out of him since. I just got up to look at the screen, and it tracks the seizures on the side. Even though I have seen 1 seizure, he had 16! So does that mean he's really having 10 or more subclinical seizures for every 1 we see? His video feed is blocking the seizures it recorded even before the ones showing so there are even more I don't see. That is terrifying to me! So here we sit completely unsure of what's coming next. This is all just so frustrating an exhausting!!!!
|The seizures in red on the side.|
And a big thank you to all those who have donated and spread the word the last couple of days about Ethan's seizure dog fund! I can't believe how generous some people can be, it's just so amazing! We are getting closer to our goal! If we ever get out of the hospital I can start puppy searching:)