|All set to leave the hospital!|
While his seizures are decreasing for the time being, the side effects are in full force. He walks around shaking all day. It's horrible to see him like that, and I can't imagine how he feels. He gets frustrated with it sometimes, which is just too sad. This morning I was walking him down the stairs (imagine walking a toddler down the stairs, we're that careful, if not more) and he was stumbling every step and he looked at me and said I can't walk. It's so sad. He just wants to be a regular little boy and he's debilitated not only by the seizures, but what we're doing to "treat" them. He's so tired all the time. He sleeps all night (he's been a bit restless lately), gets up in the morning, eats breakfast then I beg him for 15 minutes to just swallow his pills while he throws up a few times, and takes a nap. Wakes up a few hours later to take more pills, eat lunch, play for 15 minutes then take another nap. Then he wakes up plays for a few more minutes, eats dinner, spends another 15 minutes throwing up while we beg him to take his pills and goes back to sleep. He's so tired all the time. He literally passes out anywhere. He'll lay down and start fake snoring and be out 5 minutes later. I have a 13 month old that doesn't sleep this much.
|Apparently this was a good napping place.|